Showing posts with label Arnold Chiari. Show all posts
Showing posts with label Arnold Chiari. Show all posts

Tuesday, February 22, 2011

A New Year and Off to a Great Start!!!!!!!!!!!!






This picture was taken last year after surgery

We are back!

It has been a little over a year since
Lilly had surgery for Arnold Chiari
The end of December she had her check up
and MRI with her neurosurgeon and she
was cleared for a year! I cannot tell you the
joy that news brought to our family!!
Amazing news and the
best way to start off 2011!
GOD IS GOOD!!!!!!!!!!!

We just want to say something
to all of our amazing friends,
(some which we have never met but hold you close to our heart)
for all the prayers that were said
for Lilly and for our family,
dinners, playdates for Emma and your
heart felt contributions to
Lollipops for Lilly last year.

Also for your continued prayers and concern
we want to say thank you from the bottom of our hearts!

Along with our faith you
all helped us get through the
most stressful time our
family has ever gone through!!!

We were are truly blessed and will
forever be greatful for everyones help!

Lilly is doing awesome now!
She is going to school and has
overcome so many obstacles since surgery!

Emma is doing well too!
She is half way through first grade
She has had a fun year this year she
is learning to play the violin....

Will post again later just wanted to give a quick update!

Tuesday, March 2, 2010

Conquer Chiari Walk Across America~Save the Date!

So excited today to
tell you all about the
Conquer Chiari Walk Across America WALK

This is so awesome and I am
so excited to be a part of
getting the Houston/Galveston
walk organized.

We dont have all the details yet but
the National date is Septemeber 18, 2010
we will have location and time to be
announced at a later time.

Since Lilly was diagnosed with Arnold Chiari
I have really wanted to get the word out about
her condition to help others.


I feel this is my way to help my daughter and
help all of those who suffer with Chiari

Hope that when we have a time and location
set that you will all join us in this walk!

It will be between Houston and Galveston
we are trying to target all the areas around
both cities.


Also just an update on Lilly....
She has been recovering awesome
yesterday afternoon she ended up
with a stomach bug that her sister
had this weekend.

Last night was rough she was screaming
every time she got sick saying her
head was hurting!
When babies hurt mommies hurt!

This is just a bump in the road
I know is soon as she gets passed
we will continue to move forward
because she has been doing really well

One more thing!
PLEASE CONTINUE TO PRAY FOR
LAYLA GRACE AND HER FAMILY!
THIS PRECIOUS BABY NEEDS
OUR PRAYERS!!