A New Year and Off to a Great Start!!!!!!!!!!!!

This picture was taken last year after surgery

We are back!

It has been a little over a year since
Lilly had surgery for Arnold Chiari
The end of December she had her check up
and MRI with her neurosurgeon and she
was cleared for a year! I cannot tell you the
joy that news brought to our family!!
Amazing news and the
best way to start off 2011!
GOD IS GOOD!!!!!!!!!!!

We just want to say something
to all of our amazing friends,
(some which we have never met but hold you close to our heart)
for all the prayers that were said
for Lilly and for our family,
dinners, playdates for Emma and your
heart felt contributions to
Lollipops for Lilly last year.

Also for your continued prayers and concern
we want to say thank you from the bottom of our hearts!

Along with our faith you
all helped us get through the
most stressful time our
family has ever gone through!!!

We were are truly blessed and will
forever be greatful for everyones help!

Lilly is doing awesome now!
She is going to school and has
overcome so many obstacles since surgery!

Emma is doing well too!
She is half way through first grade
She has had a fun year this year she
is learning to play the violin....

Will post again later just wanted to give a quick update!

Here is just a little of what has been going on....

Here is just a little of what
has been going on with us!
We have been busy and now I am
back to my blog

I started back to work
and it has been hard hard
for me to leave my precious Lillybeana!
Emma is in school the hours I work
so she doesnt really miss me :)

The good thing is it is part time
just 3 days 9 to 2 so I still pick
them up and come home and have the
afternoon with both of my girls.

These pictures were taken over Easter!
Some of my favorites!

The bunnies belong to Sam
and my girls are in love with them....

As you can see in the picture of Lilly
with the Easter bunny she is not to crazy
about the Easter bunny. On Easter morning
after the bunny came and left eggs and a basket
full of goodies she then realized oh wow that
bunny is fun!

Lilly is doing awesome!
She has had some weird
things going on with her arms
but we are charting and go back
to the neurosurgeon soon.

Lilly is doing well!

Lilly had her check up
with her neurosurgeon last
week and it went well!

Lilly was screaming
when we drove in the parking
lot to Texas Children's
saying NO MOMMY! NO MOMMY!
Her Dr. has nick named
her poopsie
He walked in and said
HI POOPSIE!
She wanted nothing to do
with him and was hysterical.
he even offered her a penny
if she would walk over to
him and say hi!

At first she was not falling for this.....

By the end of the visit
when she realized
he wasn't going to poke on
her or give shots or take
blood

She walked over and got
the penny!

We walked out and I said
YAY!
Lilly guess what you get to go
to the park and ballet now!
Whoo Hoo!

The Dr. released her to do
activities the only limitations
she will have are no
Gymnastics, Soccer
and Trampoline
that will be for the rest
of her life but we can
avoid those it wont be that
big of a deal!

Lilly is doing so well..
I cannot tell you how thankful
we are that she has recovered so
well and quick....kids are so RESILIENT!

Thanks again for all of your prayers and continued support!

Conquer Chiari Walk Across America~Save the Date!

So excited today to
tell you all about the
Conquer Chiari Walk Across America WALK

This is so awesome and I am
so excited to be a part of
getting the Houston/Galveston
walk organized.

We dont have all the details yet but
the National date is Septemeber 18, 2010
we will have location and time to be
announced at a later time.

Since Lilly was diagnosed with Arnold Chiari
I have really wanted to get the word out about
her condition to help others.


I feel this is my way to help my daughter and
help all of those who suffer with Chiari

Hope that when we have a time and location
set that you will all join us in this walk!

It will be between Houston and Galveston
we are trying to target all the areas around
both cities.


Also just an update on Lilly....
She has been recovering awesome
yesterday afternoon she ended up
with a stomach bug that her sister
had this weekend.

Last night was rough she was screaming
every time she got sick saying her
head was hurting!
When babies hurt mommies hurt!

This is just a bump in the road
I know is soon as she gets passed
we will continue to move forward
because she has been doing really well

One more thing!
PLEASE CONTINUE TO PRAY FOR
LAYLA GRACE AND HER FAMILY!
THIS PRECIOUS BABY NEEDS
OUR PRAYERS!!

PLEASE SAY LOTS OF PRAYERS FOR LAYLA GRACE TODAY!

Please pray for this family that
God may bless this family with a
miracle!

This sweet little angel is so young!

I have complete faith that
God can heal this baby girl
and hoping and praying
that she is not in anymore
pain and that she is completely
healed!

Please join me in saying lots of prayers

for this precious little girl

Her mommy and daddy and two sisters

Here is her story www.laylagrace.org

We need to count our BLESSINGS
EVERY MINUTE OF EVERY DAY!

Thank you for your prayers for this sweet baby girl!

A Silly Lilly Today!

Had a wonderful afternoon with
NeNe and PawPaw, even though Em
was sick she enjoyed them being here.

Our little clown Lilly
was cracking us up today!
I think she has turned the corner.

She has been so happy all day!
So sweet, giving us lots of hugs and snuggies (snuggles)
Playing and coloring and non-stop chatter!

Oh how I love the sound
of her happy chatter!!!

She has been pretty entertaining today
She went up to Em and said sissy feel better
I love you so much and dont want you to be sick!
I need you to feel better K?

Her next words were

"sissy that toothfairy needs to come,
and get out your snaggy toof (tooth), I dont
like that snaggy toof (tooth)!
You just had a snaggy toof last time and now
dares another one"!

She said this so serious and it was so funny!

We have welcomed her silliness and humor!
LOVE IT! LOVE IT! LOVE IT!

Emma even laughed when Lilly was talking
to her about her snaggy toof!

Emma is doing a little better she has not been
sick since noon Zofran has helped.
Not eating yet but was able to keep sprite down
this afternoon.

Hoping tomorrow she is feeling lots better
Don't like when my babies are sick!!

Thank you for your continued prayers
We are truly blessed and count our blessings
every min of the day!

We need a break from being SICK

Ok I am thinking that we should
have a break from being sick in
our house!

Last night we went to dinner because
we got a gift card to our favorite
Mexican Restaurant
Lilly was feeling ok and having
cabin fever.
We thought we will go and see.
Lilly was doing great dancing to
the music, telling us "This is some
Great Music" we were cracking up!

Then I looked over at my Em and she
said mommy I feel really really sick!

She looked bad.....
So luckly Andy and I drove separate
cars

I took Emma and left and Lilly and Daddy
waited and got the food to go.

The min we walked in Em threw up and has
been throwing up all night long!

She could not sleep and
was awake until 7:00 am.
The Dr just called in Zofran
so hopefully that will help!

Emma has literally been sick
since Lilly had her surgery.
Not with a stomach bug but other stuff.

Prayers for my Emma that she feels better
and that Lilly doesnt get this.

Lilly is doing really well!
We go back to Dr. Dauser on Tues
for her check up and hopefully
she will be released for some
activities.


My sweet hubby is not home alot these
days. He has a full time job but also is one
the Varsity Baseball Coaches at
Episcopal High School (where he went to school)

Yesterday EHS played Bellaire (where I went)
I supported my husband by routing for EHS!
Bellaire won! Not good, but his team he said
played well there were just some errors.
My hubby works so hard and he is so blessed
that he coaches. If you know my husband you
know that his passion is BASEBALL. Played his
whole life and some in college. He is blessed to be
able to coach and help these kids. He is great coach!

NeNe (MOM) and PawPaw are coming in today!
Thank goodness!!!!!!!
I have been doing ok with running on empty
but yesterday I hit a wall of exhaustion
I didnt know existed! Being in and out of
the hospital with Lilly and Emma being
sick has finally caught up with me.


Thank you for your continued
prayers for our family!